In 2017, Attorney Bo Bigelow and Daniel DeFabio, both of whom are parents of children with rare diseases, founded DISORDER: The Rare Disease Film Festival.
The festival was created to showcase films from around the world that address the challenges of life with a rare disease. In addition to the films, rare disease researchers and patient advocates will be on hand to share their stories with attendees.
The DISORDER website reads: “We believe increased awareness can connect patient families, inspire conversations about translation applications of current science, lead to new paths for research and save lives. These films put the often abstract and dire clinical information into the context of real people living their lives.”
This year, they’re excited to host the festival on November 9 & 10 in San Francisco.
“We’re thrilled to bring the festival to a new audience this time, where we’ll continue to pursue our goal of spurring collaborations that lead to cures,” said Bigelow.
The festival has received a number of media mentions already, which can be viewed here.